The beauty of the soul.

By Lori Schuster


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The beauty of the soul.
10.03.06 (11:46 am)   [edit]

Note:  This photo is my most precious possession.  It goes along with the story that I am about to tell. I originally posted this in February of 2005.  I think that it’s worth telling again.  I have added some more information because the emotion is not as raw.  I hope that what you see in this is not a girl dying of cancer, but the triumph of the human spirit.  Maybe someday when you are faced with something that seems impossible, you will think of this story and understand that you are capable of enduring so much more than you ever imagined you could.

THE BEAUTY OF THE SOUL…

02.09.05 (10:12 pm)
The beauty of the soul shines out when a man bears with composure one heavy misfortune after another, not because he does not feel them, but because he is a man of high and heroic temper. --Aristotle

Last Tuesday night wearing a Led Zeppelin T-shirt and a yellow Chrysanthemum behind her ear, Alison Haley Cloud walked into the Crossing Café with her two best friends, drank a Jones Soda and spit in the face of cancer.

Had someone told me that morning that Ali would ever again walk out our door I would have thought them cruel. Yet, there she sat, drinking a soda, radiant in her victory and oblivious to the fact that her very presence added value to the lives of everyone around her.

Ali hadn’t been able to eat solid food for nearly a month. She was extremely thin and had been barely able to speak or walk for days—not even the short walk to the bathroom.  It was about 7:00 p.m. and she very insistently asked to see her friend Gaby.  When I walked in to check on them,  I saw Ali sitting up in bed while Gaby combed her hair and applied her eye shadow.  The clash of emotions in seeing this hurt so much that I had to leave the room to regain my composure..

When I went back in, Megan was scurrying around the room for various pieces of clothing and then Ali told everyone to leave for a minute.  When the room was cleared, I said “what’s going on Birdie?”  Very slowly—trying to form her words, she said, "I need to leave this house.”
“Ali…” , I answered, not knowing if it was her or the morphine speaking...
“Mom,!” she said very emphatically, with her beautiful brown eyes pleading, “I need to leave this house.  I want to go to the crossing.”

There were a million reasons why we shouldn’t go… but they all paled in comparison to the one reason that we should.

Kayla showed up as we were getting her ready and cancelled her plans so that she could join Ali at the coffeehouse. It took two of us to hold her up and one to tuck in the tubes from her pain medication. As we headed toward the stairs, she stopped at her wall vase and asked for one of the yellow Chrysanthemums, which she placed behind her ear.

I could tell that Kayla and Gaby were working very hard to hold back their tears.

I had the car warming up and scraped the snow from the porch.  It took forever to get down the stairs and put her in the car.  Inside, I was frantic.

All eyes were on Ali as we led her slowly from the back door of the Crossing to the couch that she had set her sights on. I left her alone with her friends and went to get them a soda.  As Ali had worked at the Crossing, people who knew her began to gather around.  I stood across the room with her dad who I had called to meet us and we held back our tears as we watched our brave and determined daughter.

The Hospice nurse later told us that Ali’s trip to the Crossing had the same effect on her as running a Marathon would have on any one of us. That night, as I lay in bed next to her, she moaned and cried because her body ached. Her body ached but her spirit soared. She had done the unthinkable.

Ali’s soul has never stopped shining. Misfortune after misfortune has been heaped upon her tender shoulders and she has never buckled, never faltered, never let the light go out of her eyes. Her body was failing her but her spirit would not. Never again will I be the same. How can I ever expect to lead an ordinary life when I have been witness to a hero wearing a Led Zeppelin shirt and a yellow Chrysanthemum?

 


posted by: doeeyed (reply)
post date: 10.03.06 (12:04 pm)

What a beautiful soul Ali has.
You were very lucky to have her as your daughter and she was lucky to you, as her Mom.
Thank You for letting us peek into Ali's world.



posted by: fractalmom (reply)
post date: 10.03.06 (2:01 pm)

Thank you Lori. for this post, for giving us all Ali through your eyes and genes, and for being here.

dawn



posted by: 69whisper (reply)
post date: 10.04.06 (12:14 am)

find no words to comment.




posted by: consciousphobic (reply)
post date: 10.04.06 (3:10 am)

I think of all my troubles and they are nothing compared to what you and yours have been thru, again thanks for sharing this touching story.



posted by: rob4unc085 (reply)
post date: 10.04.06 (3:37 am)

GREAT GREAT BLOGS, KEEP UP THE GOOD WORK



posted by: surrogate (reply)
post date: 10.04.06 (4:55 am)

What a wild bunch of mixed emotions you must have been feeling in looking back on that night. And, really, it's such a simple thing too, isn't it? A kid wanted to see a friend; wanted to be social. No biggie. That's what kids want and need to do. But in reality - HER reality - it was huge.

It's a beautiful story.



posted by: goldie (reply)
post date: 10.04.06 (5:37 am)

no holding back the tears tonight... that is an inspiring story. Thanks to u and Ali for the strength in living and then retelling such passionate moments.
i really do appreciate your stories. they always make me smile...
Ali sounds like a beautiful young woman. you deserve to be this proud.
g.g.



posted by: Liz N (reply)
post date: 10.04.06 (3:31 pm)

I'm so thankful for your writing, your faithfulness to Ali's story and to your own.

Ali's been with me at college every day now. She's a blessing.



posted by: lorischuster (reply)
post date: 10.04.06 (4:39 pm)

Reply to: doeeyed
She had an amazing soul--thank you. I was so blessed to be her mother...as I am blessed to be Megan's mother I must add. :) thank you for always having something nice to say Doe...I can't imagine you losing your temper...does that ever happen? :)




posted by: lorischuster (reply)
post date: 10.04.06 (4:41 pm)

Reply to: fractalmom
Dawn, thank you. I feel like if I share her, in some way I keep her amazing spirit alive. Glad you stopped by. Hope to catch up on my reading soon. Hope your week is going well--or at least not insane! :)




posted by: lorischuster (reply)
post date: 10.04.06 (4:45 pm)

Reply to: LadyG
She was lovely and brave but also extremely funny. She really had a knack for making people laugh without even trying. It is very nice of you to follow along with me. thank you...




posted by: lorischuster (reply)
post date: 10.04.06 (4:46 pm)

Reply to: 69whisper
No words necessary. :) glad to see you back!




posted by: FinalyFree (reply)
post date: 10.04.06 (4:52 pm)

Even better read the second time around. Thanks Lori for once again reminding us all to treasure the special and not so special times.



posted by: lorischuster (reply)
post date: 10.04.06 (4:56 pm)

Reply to: consciousphobic
everything seems hard when we're going through it...we only have our own experience and perspective. I never want people to feel like I'm preaching...so know that! it's always nice to see that you stopped by. you having a good week???



posted by: lorischuster (reply)
post date: 10.04.06 (4:57 pm)

Reply to: rob4unc085
thank you. :)




posted by: lorischuster (reply)
post date: 10.04.06 (5:01 pm)

Reply to: goldie
there were SO many moments like that at the end--not quite so dramatic as this...but I felt like little bits of me were being killed off from the inside. Even though I cried when I was working on this post... it's a healing thing every time I think about it. I'm glad to know that the stories make you smile--I always feel like I sound so depressing and I'm really NOT! :) I really am proud of both of my daughters. I am one lucky woman. Nice that you stopped by Goldie. Hope that I see a new post from you when I check in.




posted by: lorischuster (reply)
post date: 10.04.06 (5:03 pm)

Reply to: LIZ
How are you sweetie???? I think about you guys all the time. I hope school is going well for you and I'm glad to know that you took Ali along. Email me sometime and let me know how its going. Love you.




posted by: lorischuster (reply)
post date: 10.04.06 (5:06 pm)

Reply to: surrogate
You are SO right...I never really thought about it from that aspect. She just wanted to go to the coffeehouse like everybody else. Yes for her it was huge. ok...so that made me cry...good tears though.




posted by: 69whisper (reply)
post date: 10.04.06 (11:18 pm)

Reply to: lorischuster
thanx :)



posted by: doeeyed (reply)
post date: 10.05.06 (6:01 am)

Reply to: lorischuster "I am blessed to be Megan's mother I must add. :) thank you for always having something nice to say Doe...I can't imagine you losing your temper...does that ever happen? :)"

Of course you're blessed to be Megan's Mother :) I didn't mean to leave her out. Such beautiful girls, inside and out! Our children are such a gift.
Do I lose my temper? me? I wish I could honestly say I didn't.
Looking forward to coffee!




posted by: lorischuster (reply)
post date: 10.05.06 (6:16 am)

Reply to: doeeyed
I know that you were commenting on what I wrote...I worried that I might sound like I was correcting you but I was just ADDing to what you said. I don't think we could get along if you didn't lose your temper once in a while! :)




posted by: basild (reply)
post date: 10.05.06 (10:10 am)

Beautiful, beautiful story. Thank you.



posted by: lorischuster (reply)
post date: 10.05.06 (3:10 pm)

Reply to: LadyG
thank you for taking the time to do that and I feel equally blessed to know you and I mean that sincerely. :)



posted by: lorischuster (reply)
post date: 10.05.06 (3:12 pm)

Reply to: FinalyFree
Thank you. That's what happens when you get my age...you start repeating yourself!




posted by: lorischuster (reply)
post date: 10.05.06 (3:15 pm)

Reply to: basild
It is one of those stories I wish were pure fiction. Thank you for your very kind comment.



posted by: MrsGreenThumb (reply)
post date: 10.09.06 (6:13 am)

I cannot imaging losing a child, she sounds like a beautiful soul and looks like an angel. You must have had a wonderful relationship with Ali, just as you have with Megan. I know there is a huge hole in your heart which time softens, but it never heals. You were blessed to have had the opportunity to raise such fine young women. It takes the trials that life gives us to appreciate the mundane and be grateful for those special moments. After I lost my mother under difficult circumstances, I never looked at things the same.



posted by: apyjo (reply)
post date: 10.09.06 (8:32 pm)

*Lori*
I have no words.



posted by: Sandy (reply)
post date: 10.13.06 (4:15 pm)

Lori, thank you for sharing another story about Ali. She was and is indeed an angel.



posted by: Mimi (reply)
post date: 10.15.06 (3:21 pm)

Though I never met Ali, through your beautiful stories I feel as if I not only met her but know her. What a lucky girl to have such a loving mother. Thanks for seeing through the pain to share thoughts that can uplift others.

Mimi



posted by: judebaker (reply)
post date: 12.05.06 (10:48 am)

your post is beautiful, I am a trappist monk and part of our formation is to recognize the beauty of each person by listening and seeing with the ears and eyes of our hearts, only then can one see the world as something other than a place filled with hate and pain. thank you for your writing brother Jude, O.C.S.O.



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post date: 10.21.07 (5:56 am)

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post date: 10.21.07 (5:57 am)


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Grace, beauty, humor, strength.
Alison Haley Cloud
Nov. 16, 1987-March 1, 2005